Wiliams Syndrome Walk

Individuals with Williams syndrome(WS) have extraordinary gifts and unique challenges.  But not enough people know that. During a full week of activities in May, volunteers for the Williams Syndrome Association (WSA) will work hard to inform our community and others across the country about Williams syndrome.  As part of the WS Awareness Week, a Walk for Williams will take place in over 40 locations throughout the country to benefit the Williams Syndrome Association. Locally, a walk will be held May 19, 2012 on the boardwalk in Ventnor, NJ, presented by the Downbeach Film Festival.  Ventnor resident Bill Sokolic, walk coordinator, will be joined by local committee members and businesses to help spread the word about Williams syndrome and raise critical funding for programs.  Registration begins at 9 a.m. in the gazebo at Newport Avenue and the boardwalk; the walk starts at 10 a.m. and goes in both directions along the boardwalk. The majority of the money raised will directly enrich the lives of individuals and families affected by Williams syndrome. The remainder will help fund the Downbeach Film Festival, which hosts the Atlantic City Cinefest, October 12 to 14, in Atlantic City.  Williams syndrome is a genetic condition that is present at birth and can affect anyone.  It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities.  Local residents are encouraged to come out and support families affected by Williams syndrome and the WSA. To register for the walk online, visit www.walk4williams.org.  If you would like more information about this event or to obtain a pledge form, you can also contact Bill Sokolic at bsaks47@comcast.net.